The storage and use of newborn babies’ blood spot cards: a public consultation

Q9b: Which of the proposed models do you think should be used?

1. Neither the public panel nor the 5 yearly public consultations

2. The public panel only

3. The 5 yearly consultations only

4. Both the public panel and the 5 yearly consultations

Please give your reasons for your answer:

Q9c: Do you have any other suggestions or comments about ongoing public involvement in
the management of the stored blood spot cards?

Thank you for answering our questions

Q10: The questions above ask for your views on:

• the benefits and challenges of research using stored newborn blood spot cards, and

• the management of the UK newborn blood spot bank

Are there any other questions that you feel are important for us to consider?

If you have any other views about the storage, use or management of newborn blood
spot cards please add them below.