The storage and use of newborn babies’ blood spot cards: a public consultation



A family member (other than a parent) of a child affected by one of the
screened conditions

A member of a support group related to one of the screened conditions

A member of a support group not related to the screened conditions

A member of a genetic interest group

A potential user of the UK newborn blood spot bank;

A researcher

A research funder

A research organisation

A member of ethical or moral structures within UK society

A member of an organisation protecting consumer rights

A member of an ethical or religious group

Other member of the public:

A member of the public with no particular involvement or links to newborn
screening or the UK newborn blood spot bank

Other (Please specify............................................)

Please indicate your view regarding the following statements:

This response may be published as part of an appendix to the final report

Yes

No

Anonymously only

This response may be quoted in the report

Yes

No

Anonymously only

21



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