□ A family member (other than a parent) of a child affected by one of the
screened conditions
□ A member of a support group related to one of the screened conditions
□ A member of a support group not related to the screened conditions
□ A member of a genetic interest group
A potential user of the UK newborn blood spot bank;
□ A researcher
□ A research funder
□ A research organisation
A member of ethical or moral structures within UK society
□ A member of an organisation protecting consumer rights
□ A member of an ethical or religious group
Other member of the public:
□ A member of the public with no particular involvement or links to newborn
screening or the UK newborn blood spot bank
□ Other (Please specify............................................)
Please indicate your view regarding the following statements:
This response may be published as part of an appendix to the final report
□ Yes
□ No
□ Anonymously only
This response may be quoted in the report
□ Yes
□ No
□ Anonymously only
21
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