The name is absent

Sen & Goldbart

"The

1. Advice/

The Indian

Field workers

Not clear -

Training workshops

(a) "The families were identified

No statistical

(2005).

organisation
that initiated

feedback

Institute of

Cerebral Palsy

employed by
partner NGOs

possibly by IICP,
but may just

for field workers at
IICP home base, tour

in one of two ways. In the case of
a family with a disability already

outcomes

Partnership

the project,

2. Support with

team and the

and community

use existing

of IICP premises,
extensive feedback
from field workers.

Each of the partners
requested an initial

known to the field worker or via

in action:
introducing
fa mi Iy-based
intervention for
children with

Indian
Institute of
Cerebral Palsy
(IICP), had
professionally

service and
resource access
(including
benefits)

three NGOs (in
partnership).

volunteers,
some already
known to the
partners and
some recruited

resources
available
to them &
to partner
organisations

other slum dwellers

(b) Initially, the entry criteria
for the services = urban families
who were vulnerable and

disability in
urban slums of
Kolkata, India

WOE: Low

One group pre-
post test

qualified,
experienced
staff and
extensive
experience of
working with
families with
a child with
disability in
urban, semi-
rural, and rural
areas

3. Specific
education
intervention

4. Parent
training

5. Personal/
social∕family
support

6. Health
services (not
psychology/
counselling)

7. Assessment

"An initial
meeting
with each
organisation
was followed
by a written
'agreement’
on mutual
roles and
responsibilities.
It highlighted
the
participatory
nature of the
'partnership’
and emphasised
continuous
consultation,
sharing, and
dialogue.”

"Agreement”
between IICP
and partner
organisations
presumably
involved
some form of
enforcement,
although this is
not stated.

specially.

orientation so that
the field workers
and a "key named”
person co-ordinating
the project within
the organisation
could be familiarised
with the rationale
and basic aims of the
project

economically disadvantaged and
had a child (aged 0 to 15 years)
with disability. However, this
original plan was modified so that
young adults were also included.

(c) Recruitment through home
visits as under (a) and through
community meetings: Other
measures that may have helped
maintain their participation
included:

• team efforts to be
accommodating, respectful, and
nonintrusive

• the needs assessment using
language suitable for those with
low literacy levels

• the involvement of families "in
identifying their own perspectives
and needs so that there was
potential for the boundaries
between the "researchers and
those researched” to be less
marked.

(d) Kolkata, West Bengal, India

Perception
outcomes
+ Education
outcomes
+ Family
outcomes