(2005). |
organisation that initiated |
feedback |
Institute of
Cerebral Palsy |
employed by partner NGOs |
possibly by IICP, but may just |
for field workers at IICP home base, tour |
in one of two ways. In the case of a family with a disability already |
outcomes |
in action: introducing fa mi Iy-based intervention for children with |
Indian Institute of Cerebral Palsy (IICP), had professionally |
service and resource access (including benefits) |
three NGOs (in partnership). |
volunteers, some already known to the partners and some recruited |
resources available to them & to partner organisations |
other slum dwellers
(b) Initially, the entry criteria for the services = urban families who were vulnerable and | |
disability in urban slums of Kolkata, India
WOE: Low
One group pre- post test |
qualified, experienced staff and extensive experience of working with families with a child with disability in urban, semi- rural, and rural areas |
3. Specific education intervention
4. Parent training
5. Personal/ social∕family support
6. Health services (not psychology/ counselling)
7. Assessment |
"An initial meeting with each organisation was followed by a written 'agreement’ on mutual roles and responsibilities. It highlighted the participatory nature of the 'partnership’ and emphasised continuous consultation, sharing, and dialogue.”
"Agreement” between IICP and partner organisations presumably involved some form of enforcement, although this is not stated. |
specially. | |
orientation so that the field workers and a "key named” person co-ordinating the project within the organisation could be familiarised with the rationale and basic aims of the project |
economically disadvantaged and had a child (aged 0 to 15 years) with disability. However, this original plan was modified so that young adults were also included.
(c) Recruitment through home visits as under (a) and through community meetings: Other measures that may have helped maintain their participation included:
• team efforts to be accommodating, respectful, and nonintrusive
• the needs assessment using language suitable for those with low literacy levels
• the involvement of families "in identifying their own perspectives and needs so that there was potential for the boundaries between the "researchers and those researched” to be less marked.
(d) Kolkata, West Bengal, India |
Perception outcomes + Education outcomes + Family outcomes |